Life Tethered to a Concentrator — Caroline Gainer

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Caroline Gainer is from West Virginia, the state with the highest rate of COPD in the United States. She was diagnosed with moderate-to-severe COPD in 2013 after a pneumothorax (lung collapse). After two more lung collapses she was diagnosed as severe. She has been very active with the American Lung Association and the COPD Foundation as an advocate for people with lung disease. She hopes that her column, “Life Tethered to a Concentrator,” will inspire others to live their best life with COPD.

Losing myself, finding myself: How recovery is harder with COPD

There are times in life when illness doesn’t just slow you down— it rearranges you. I didn’t see it happening at first. I thought I was simply tired or behind, in need of a weekend to catch up. But slowly, almost quietly, I began to lose the version of myself…

Learning how to ask for help was key to living better with COPD

This year I’ve realized that those of us with chronic obstructive pulmonary disease (COPD) may need help accomplishing essential tasks around the home, such as yard work and housework. Maintaining our blood oxygen saturation above 88% is necessary to keep our body functioning; anything below that is considered…

3 medical devices that help me with COPD management

Many of us with chronic obstructive pulmonary disease (COPD) have received medical devices to help with our breathing. At first, it seemed to me that some of these devices worked better than others. But after gaining experience with them, I think that impression was based on the fact that…

When a COPD symptom changes our routines, we must adapt

I’m dealing with a new symptom of my chronic obstructive pulmonary disease (COPD): excess mucus. It has to be expelled, since I have trouble coughing it up on my own. That’s why my doctor wanted me to take the expectorant Mucinex (guaifenesin) twice a day. Mucinex, like…

Addressing the comorbidities of COPD is crucial, but it can be tricky

Chronic obstructive pulmonary disease (COPD) is often accompanied by several comorbidities, including heart disease, osteoporosis, anxiety, and depression. Two of my prominent comorbidities are gastroesophageal reflux disease and osteoarthritis. When one or more of these conditions become pervasive, it can really take the joy out of…

Being spontaneous is no longer an option with COPD

Someone asked me recently what I miss about my life before I had chronic obstructive pulmonary disease (COPD). Without hesitation, I answered that I missed being spontaneous. I can’t just decide, for example, that I want to go to the mailbox. I have to prepare for it, which requires…

How advances in technology have improved life with COPD

Carrying a portable oxygen concentrator (POC) or tank in a backpack is undeniably inconvenient. However, it’s important to remember that chronic obstructive pulmonary disease (COPD) patients are in a much better position today than we were in the past, thanks to numerous advances in oxygen delivery technology. The…

To manage stress with COPD, sometimes I need a mini-vacation

My inner voice went bananas last week. I couldn’t make a simple decision, such as when was the best day to go to the drugstore to get my prescriptions. I am sure that age and chronic obstructive pulmonary disease (COPD) played a role in my confusion. I felt like…

Handling the chores when I feel like crap, but I’m not that sick

I feel like crap, but I’m not badly sick. I decide I might as well get busy so I can feel accomplished at the end of the day. I make this decision often, but it’s a little more challenging with my chronic obstructive pulmonary disease (COPD). Sometimes my decision…

What I’m including in my new exercise routine with COPD

Last week, I noticed that it took very little for me to find an excuse to put off exercise. This isn’t normal for me, so I decided it was time for a change. I recalled an article I’d recently read about the benefits of changing up your workout routine.

How I eliminate the COPD ‘garden weeds’ of my mind

As a gardener, I sometimes imagine my mind as a garden full of various plants. Advocating for chronic obstructive pulmonary disease (COPD) patients while living with the disease myself sometimes causes a few weeds to grow in my mind. I’ve written about how advocacy helps me stay motivated.

Let’s talk about COPD and incontinence

Incontinence ranks right up there with religion and politics as topics we don’t usually mention in polite company, partly because it’s embarrassing. But let’s discuss it anyway, because it affects many patients with chronic obstructive pulmonary disease (COPD). I’m fortunate to have never had an incident with incontinence in…

A waiting game reminds me of being diagnosed with COPD

For two weeks, I’ve gone to at least two doctor appointments a week to learn what’s causing me stomach problems atop my chronic obstructive pulmonary disease (COPD), but I still don’t have a definitive answer. I’ve been having pain in the area of my hiatal hernia (in the…

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