I recently received a call from my oxygen provider asking if I’d be home the next day. They wanted to bring me a new stationary oxygen concentrator, also known as a home oxygen concentrator. Durable medical equipment providers (DMEs) rent those of us with chronic obstructive pulmonary disease…
Life Tethered to a Concentrator — Caroline Gainer

Caroline Gainer is from West Virginia, the state with the highest rate of COPD in the United States. She was diagnosed with moderate-to-severe COPD in 2013 after a pneumothorax (lung collapse). After two more lung collapses she was diagnosed as severe. She has been very active with the American Lung Association and the COPD Foundation as an advocate for people with lung disease. She hopes that her column, “Life Tethered to a Concentrator,” will inspire others to live their best life with COPD.
Growing up in West Virginia, free natural gas was one of those peculiar perks of living along the oil and gas rights-of-way. Landowners granted access in exchange for this benefit, and it kept our homes warm — but not without complications. On the coldest nights, the gas would sputter out,…

Having chronic obstructive pulmonary disease (COPD) makes us patients more susceptible to lung infections. These infections can creep up on us quickly and progress to a severe condition in just a few days. This was the case for me two summers ago. During my hospital stay, I…
Those of us with chronic obstructive pulmonary disease (COPD) often complain of fatigue, which is much different from simply being tired. Tiredness can be addressed by a good night’s sleep. Fatigue is a different story. The short and sweet of it for me is that tired = good,…
Oxygen therapy is required for many of us with chronic obstructive pulmonary disease (COPD). My column’s name, in fact, comes from my need to be connected to an oxygen concentrator. I have an Inogen G4 Hip Bag to carry my portable version; it’s pricey, but worth…
Pulmonary rehabilitation can help to significantly increase exercise tolerance in people with chronic obstructive pulmonary disease (COPD). Many hospitals have pulmonary rehabilitation programs, but some patients have difficulty getting to them because they don’t drive, can’t secure a ride, or don’t have easy access to public transportation. One…
It’s not uncommon for those of us with chronic obstructive pulmonary disease (COPD) to suffer from cachexia, or wasting disease. A 2019 study found that people with cachexia or pre-cachexia had a higher death rate than those who didn’t suffer this uncontrolled weight loss. The reason I’m…
Those of us with chronic obstructive pulmonary disease need to be prepared for unexpected challenges like inclement weather or power outages. A few days ago, I was happy that I had an emergency preparedness plan for when the power goes out. We were experiencing high winds, which caused…
I’ve been struggling lately to maintain my normally positive focus on life and living. It’s been perplexing to try to figure out why I’ve been falling further off the gloom-and-doom cliff. I eventually realized that I haven’t been doing anything leisurely lately. As the saying goes, all work and no…
I recently posted in COPD360social, the COPD Foundation’s online community, that I’ve been requiring more sleep than usual. That represents a change in thinking for me. Normally, I would’ve told myself, “Get up. What’s wrong with you? Are you going to sleep your life away?” Or, “Get up and…
You know that Dolly Parton song where she tumbles out of bed, stumbles to the kitchen, and pours herself a cup of ambition? A recent day was one of those days when I need more than one cup of ambition. Days like that one make me almost wish…
I was scrolling through Facebook recently and found a friend’s post that shared his life philosophy. That philosophy? Forget yesterday, live for today, and hope for a better tomorrow. If yesterday was a bad day because of the weather, for example, we should forget about it. But those of us…
Many people with chronic obstructive pulmonary disease (COPD) live alone, and because we must exercise care not to get whatever bug might be going around, we often must limit our excursions away from home. Both factors can make the disease a very isolating one. People with COPD may not…
Recent Posts
- A tip on oxygen concentrator maintenance: Try ‘blowing the drip’ January 20, 2026
- When it came to ‘quilting’ my lungs, I chose lifestyle seams over pleurodesis January 13, 2026
- New COPD trial doses first participant with dual-target drug BBT002 January 7, 2026
- What an old racehorse taught me about being first with COPD January 6, 2026
- A kitchen memory holds a lesson about tenderness while living with COPD December 23, 2025
- What a cat and a kangaroo mouse taught me about living with COPD December 16, 2025
- Living with COPD doesn’t mean you can’t age with grace December 9, 2025
- COPD experimental therapy moves into new phase after positive results December 3, 2025
- Having structure in my recovery routine helps me stay grounded November 25, 2025
- The comfort food that diagnosed my dangerous drift from health balance November 18, 2025