About a year ago, I attended a conference that addressed the topic of cascades of care, which an editorial in American Family Physician defined as “a seemingly unstoppable succession of medical services often initiated by an unnecessary test or unexpected result and driven by the desire to avoid even…
Life Tethered to a Concentrator — Caroline Gainer

Caroline Gainer is from West Virginia, the state with the highest rate of COPD in the United States. She was diagnosed with moderate-to-severe COPD in 2013 after a pneumothorax (lung collapse). After two more lung collapses she was diagnosed as severe. She has been very active with the American Lung Association and the COPD Foundation as an advocate for people with lung disease. She hopes that her column, “Life Tethered to a Concentrator,” will inspire others to live their best life with COPD.
The other day, while preparing one of my favorite meals, I reached for the pan where I’d just fried pork chops. Instead of rinsing it, I poured water straight into the sizzling skillet, watching the browned bits loosen and swirl like sediment in a creek bed. When I poured this…

A few weeks ago, I wrote about overcoming my fears about traveling from my home in West Virginia to Philadelphia, where I’ll be attending the Global Initiative for Chronic Obstructive Lung Disease (GOLD) conference on Nov. 13. I am now in the process of putting the finishing touches…
For those of us with chronic obstructive pulmonary disease (COPD), avoiding exacerbations — or flare-ups — is a top priority. The question is, what tools are available to help us do that? Some of them are cleansing our nasal passages, getting vaccinations, and noticing changes in the…
Those of us with chronic obstructive pulmonary disease (COPD) who use oxygen therapy must have a backup plan for emergencies like power outages and equipment failure. Even if you don’t use oxygen, it’s crucial to have an emergency preparedness plan if you use a nebulizer or other medical…
The leaves are starting to change colors here in West Virginia, which means it’s time to start getting ready for winter. Some of these seasonal preparations concern the house and the car, while others involve my health. Fall is another reminder that those of us with chronic obstructive…
As we go through life, we face many changes. Some are happy, like the birth of a child or the accomplishment of a goal, while others, like illness and physical limitations, are harder to embrace. Such experiences are on my mind because I’m preparing for my yearly wellness check. In…
Several months ago, I was selected by the pharmaceutical company Sanofi to be screened for a clinical trial called AERIFY-1. The study, which is being conducted by the global research company Care Access, aims to assess the efficacy, safety, and tolerability of the investigational therapy itepekimab in…
I haven’t traveled since the COVID-19 pandemic started. This is partly because I was afraid of contracting the virus, but also because I wasn’t sure I had the stamina to travel due to my chronic obstructive pulmonary disease (COPD) and other health issues. Dealing with acute respiratory…
Do you suffer from emotional fatigue? I do. Mayo Clinic describes emotional exhaustion or emotional fatigue as accumulated stress from challenging events. The symptoms can be physical or emotional. I believe most of us felt a degree of this fatigue because of the COVID-19 pandemic, which set off…
What types of exercise benefit patients with chronic obstructive pulmonary disease (COPD)? In my opinion, the quick answer is “all of them,” but let’s take a closer look. According to Harvard Health, the four most important types of exercise — and this is generally speaking, not specifically for…
I have embarked on a quest to reduce inflammation in my body, which is largely a result of chronic obstructive pulmonary disease (COPD) and aging. My latest effort is implementing an anti-inflammatory diet. When I was younger, anti-aging efforts revolved around preventing wrinkles and changes in body shape. But…
One topic in the most recent edition of the COPD Foundation’s Faces of COPD newsletter is staying healthy while pursuing hobbies. This subject struck me smack in the face because I’d gotten on the computer to find a squash casserole recipe. I had a beautiful summer squash in the…
Recent Posts
- A kitchen memory holds a lesson about tenderness while living with COPD December 23, 2025
- What a cat and a kangaroo mouse taught me about living with COPD December 16, 2025
- Living with COPD doesn’t mean you can’t age with grace December 9, 2025
- COPD experimental therapy moves into new phase after positive results December 3, 2025
- Having structure in my recovery routine helps me stay grounded November 25, 2025
- The comfort food that diagnosed my dangerous drift from health balance November 18, 2025
- I’m bringing my cheerleader’s pompoms to the long game of COPD November 11, 2025
- American Lung Association invests $22M in lung disease research November 5, 2025
- Weighty matters: Why 140 pounds no longer haunts me November 4, 2025
- The ache of limitation and the grace of persistence in life with COPD October 28, 2025