Life Tethered to a Concentrator — Caroline Gainer

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Caroline Gainer is from West Virginia, the state with the highest rate of COPD in the United States. She was diagnosed with moderate-to-severe COPD in 2013 after a pneumothorax (lung collapse). After two more lung collapses she was diagnosed as severe. She has been very active with the American Lung Association and the COPD Foundation as an advocate for people with lung disease. She hopes that her column, “Life Tethered to a Concentrator,” will inspire others to live their best life with COPD.

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Living with COPD isn’t a test that I have to pass

I’ve spent a long time believing I wrote this column for other people — for anyone trying to build a decent life with chronic obstructive pulmonary disease (COPD), who wakes up each morning negotiating with their own lungs. While that’s still part of it, lately, I’ve realized something I…

Caroline Gainer

Shifting from dreams of grandeur to appreciating the mundane

When I was young, I envisioned myself as memorialized in history for my outstanding accomplishments, but recovery from depression has made me fall in love with the ordinary. The onset of chronic obstructive pulmonary disease (COPD) changed my life goals, and I’ve developed a new appreciation for the…

My improved sleep quality is an encouraging sign

Note: This column describes the author’s own experiences with trazodone. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. Sleep issues haunt many of us with chronic obstructive pulmonary disease (COPD). As I mentioned in last week’s column,…

Coping with depression and chronic pain on top of COPD

Note: This column discusses depression, including thoughts of hopelessness and suicidal ideation. Resources for help are listed at the end of the column. This column also describes the author’s own experiences with various medications, including Lexapro (escitalopram) and trazodone. Not everyone will have the same response to treatment. Consult…

Trying something new can be scary, but exciting

Trying something new doesn’t always yield good results, which is why those of us with chronic obstructive pulmonary disease (COPD) need to vet any new device we may wish to try. I did my due diligence before trying out an exercise tool that has fascinated me for several years:…

When the going gets tough, I challenge myself

March is a difficult month for me. I can relate to Bill Withers’ song “Ain’t No Sunshine.” The bleak winter months in southern West Virginia get me a little (or a lot) down. Those of us with chronic obstructive pulmonary disease (COPD) struggle daily to “Keep on the Sunny…

How COPD patients can respond when seasons change

A friend asked me if there is still time to get this season’s flu shot. That got me thinking about the issues that come with the shift from winter to spring and summer for those of us with chronic obstructive pulmonary disease (COPD). First, about that question on the…

Celebrating a milestone in my recovery from pneumonia

The moment I reached the top of the stairs with an oxygen saturation of 92%, I was filled with elation and relief. Although this saturation level would be considered below normal for most people, I was excited. As I stood there, not needing to catch my breath, a wave…

How respiratory muscle strength training can benefit COPD patients

Chronic obstructive pulmonary disease (COPD) makes it hard to breathe, and many of us with the disease know that breathing exercises can help. Still, a study published in October in Chronic Obstructive Pulmonary Diseases: Journal of the COPD Foundation suggested that a combined inspiratory (inhalation) and expiratory (exhalation) muscle strength…

Should I be concerned that I’m sleeping a lot with COPD?

Many of us with chronic obstructive pulmonary disease (COPD) experience chronic fatigue, but I still wondered why I’d been sleeping more than usual lately. As usual, I did some research and am letting you in on my findings. The first article I read was published by the Cleveland Clinic…

Managing the different types of pain that can accompany COPD

While chronic obstructive pulmonary disease (COPD) is commonly associated with symptoms such as coughing, wheezing, and shortness of breath, many of us also experience chronic pain. I was interested in learning more about the types of pain that may be associated with COPD and what can be done about…

How my evening routine helps me cope with COPD

For those of us with chronic obstructive pulmonary disease (COPD), routines become an essential tool for coping with the changes that our disease brings. The focus is often on morning routines, but my evening routine has become increasingly important over time. My evening routine starts at 6 p.m., when…


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